Katie's medulloblastoma story | Patient stories

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Katie's medulloblastoma story

In 2017, two-year-old Katie was diagnosed with medulloblastoma - the most common type of paediatric cancerous, brain tumour, positioned towards the back and bottom of the brain.  

Katie was seen by a number of medical professionals at hospitals near her home before being referred to our expert team.

The youngster’s family, including mum, Angela grew concerned after Katie began vomiting regularly for an extended period of time. Her family also noticed that Katie seemed to have very poor balance and was unable to walk.

Katie’s condition worsened, so much so that she was no longer able to sit up by herself. Following tests and investigations, it became apparent there was a tumour which was putting tremendous pressure on her brain. The toddler was referred to our hospital where our Consultant Neurosurgeon Mr Guiresh Solanki and his expert colleagues performed a 12-hour emergency surgery to save Katie’s life.      

After the operation, Katie began chemotherapy treatment, underwent a stem cell transplant and started working on her rehabilitation with our Occupational Therapy and Physiotherapy teams, as the surgery resulted in Katie losing the function in the right side of her body.

Katie spent a total of seven months as an inpatient but in October 2017 she was able to go home with her family after completing her chemotherapy.

The three-year-old still visits us regularly, attending routine scans and check-ups with her consultant Dr Jenny Adamski and other members of her care team. She’s now regained the function of her right-hand side, is crawling and getting stronger by the day. Katie loves reading books with her mum, Angela and is a big fan of Mr Tumble.

Mum, Angela said:

“Katie has been through so much in her short life and no matter what’s thrown at her she’s stayed happy and positive. It’s too early to tell what the future holds, but everyone is really pleased with the progress that she’s made - we’re taking things one day at a time.

 “I’ll forever be grateful to the hospital and ‘thank you’ is just not enough. I plan to do some fundraising for the hospital and the teams that have cared for Katie. Everyone has made us feel so welcome – it feels like being part of a really big family.”