Haemophilia Unit
Welcome to the Haemophilia Unit. We care for children from birth to 16 years with both inherited and acquired bleeding disorders. We are the comprehensive care centre for children in the West Midlands with support from the haemophilia centres at Coventry, Stoke and Telford. We work closely with our adult comprehensive care centre at the Queen Elizabeth Hospital Birmingham.
We will work together with you, your child and extended family with the aim of helping your child to live their life as independently as possible this includes:
- Home visits in support of independent home treatment
- Liaising with school/nursery to provide education on caring for your child in school
- Support during inpatient stays and surgery
- Genetic testing of extended family where appropriate
- Support and education for pregnant women who are known to be carriers of an inherited bleeding disorder
- Vaccination Clinic for routine childhood vaccinations (holiday vaccinations are not included)
- Support with applications for disability living allowance where appropriate
- Individualised transition support when moving to adult care
- Educational material in various formats for all the conditions
We encourage you to chat to us about the things that you and your child would like to achieve to help tailor treatment requires and offer advice support in order to maintain safety.
As a comprehensive care centre, we work closely with many teams including:
- Play specialists and youth workers
- Psychology
- Physiotherapy and Occupational Therapy
- Dental
- Surgery
Our opening hours are 8am to 4pm Monday to Friday excluding Bank Holidays. Out of working hours children are cared for in the Emergency Department with access to haematology doctors.
We aim to run 1 to 2 social events a year away from the hospital environment for you and your child to meet other families of children with bleeding disorders.
Contact details
Haemophilia unit treatment room: 0121 333 9150
Office: 0121 333 9153
Haemophilia nurses mobile: 07879111368
Email: bwc.haemophilia@nhs.net
Switch board: 0121 333 9999
Out of hours: 0121 333 9128
Meet the Team
Dr Jayashree Motwani - Paediatric Consultant Haematologist and Centre Director
Dr Jonathan Lancashire – Paediatric Consultant Haematologist
Dr Jesal Patel - Paediatric Consultant Haematologist
Natalie Lawson – Haemophilia Specialist Nurse
Katy Reynolds – Trainee Advanced Nurse Practitioner
We also have a team of data coordinators
Useful Websites
Haemophilia Society
The haemophilia Society is a charity that supports children and adults with inherited bleeding disorders as well as families affected by the diagnosis of a bleeding disorder. They provide a wealth of information and support as well as organising events including newly diagnosed days and social events.
ITP association
https://www.itpsupport.org.uk/index.php/en/
- The ITP association supports patients diagnosed with ITP (Immune Thrombocytopenia Purpura.
- "Listening ear" contact with nominated volunteers
- An information pack
- A quarterly journal, The Platelet
- Easy to read booklets and factsheets on ITP and associated interests
- Advice on referrals for difficult or refractory cases
- Guidelines for schools
- Protocol for dentists of affected patients
- Annual conventions featuring leading ITP specialists.
Funny blood
Provides information and support for patients and families diagnosed with platelet function defects
World Federation of Haemophilia
The World Federation of Haemophilia (WFH) is a non-profit organization dedicated to improving and sustaining care for people with inherited bleeding disorders around the world.
Why Sit Out
https://www.whysititout.co.uk/
Provide advice and support regarding physical activity and support for children with a bleeding disorder.
UKHCDO
http://www.ukhcdo.org/about-us/
UKHCDO is an organisation of medical practitioners working in haemophilia their aims are:
- To preserve, protect and relieve persons suffering from Haemophilia and other inherited bleeding disorders.
- To advance the education of the medical profession, the nursing profession, professions allied to medicine and the general public in the knowledge of Haemophilia and other inherited bleeding disorders and their treatment.
Haemtrack
https://apps.mdsas.nhs.uk/Haemtrack/Home/Information
This is used to input and keep a record of your home treatment. This can be seen by your treatment centre and allows us to make judgements on whether your treatment is effective.