Stories from around our Trust

“I want Birmingham to know about my little boy’s rare disease” – Mum Kelly shares Oscar’s story for Rare Diseases Day
After years of searching for answers, experts at Birmingham Children's Hospital told Mum Kelly and Dad Mike that their five-year-old son Oscar has an extremely rare genetic disease called Creatine Transporter Deficiency (CTD).

Birmingham Children’s Hospital receives £50,000 boost with new sickle cell technology
Sickle cell patients attending Birmingham Children’s Hospital will benefit from a new red blood cell exchange device being delivered as part of a national boost in funding.

Baby Thomas on road to recovery after extremely rare toxin left him paralysed
Baby Thomas was diagnosed with suspected Botulism, a rare but life-threatening condition caused by botulinum toxin. The toxin’s spores are sometimes, though very rarely, found in soil and dust and is the chemical used in the production of Botox.

Brave Tayshelice named Young Advocate of the Year for championing sickle cell awareness
A brave nine-year-old Birmingham Children’s Hospital patient is doing all she can to raise awareness of the sometimes ‘hidden’ sickle cell disease (SCD) – a serious and lifelong condition that affects red blood cells.

New Board director for strategy and innovation announced
The Trust has welcomed a new lead for strategy and innovation at BWC.

Lucy donates over 30 litres to Birmingham Women's Hospital Milk Bank
Our Milk Bank is calling for more donors to provide breast milk to babies in our neonatal unit and provide to hospitals across the West Midlands.

Special transatlantic visit to Sheila’s plaque to honour father’s legacy
You may have read in October about the incredible story of Sheila Jones, the first patient in the world to be treated for Phenylketonuria (PKU) using a special diet prepared at our Children’s Hospital in 1951. Well, we were delighted to welcome the son of one of the key figures in Sheila’s treatment, Dr John Gerrard, who travelled over from the United States to find out more about his father’s legacy 70 years on.

Brave Harry shares his story for World Heart Month
Harry was born with Shone's syndrome, a very rare congenital heart disease where many of the left heart structures are not formed properly.

Children’s Hospital nurse volunteering to help young people across the globe
A nurse from our Children’s Hospital has recently spent time volunteering in Bolivia to help young people with cleft lip and cleft palate in communities where treatment is not always readily available.