Tumour Registry

The West Midlands Regional Children’s Tumour Registry is part of the Oncology department. We collect patient data and study patterns of childhood cancer in the region, using information going back to 1957, to give us a better understanding of what causes the disease and how it changes over time. The Tumour Registry is a specialist paediatric cancer registry and shares patient information with the National Cancer Registration and Analysis Service, which is part of NHS England.

Publications

We have published many papers in medical journals and given presentations at local, national and international conferences. We work very closely with scientific colleagues at the University of Birmingham Institute, looking at the molecular biology, or genetics, of the disease. Survival rates of childhood cancers have improved dramatically over the last 30 years and we are now researching into the long-term effects of the disease and its treatment, which will benefit present and long-term future patients.

Funding

The Tumour Registry has been funded largely from public donations and was set up in 1984 by Professor Jill Mann, making it the first dedicated Research Unit in the Trust. If you want to help us continue our vital work in studying cancer in children, please contact the Fundraising Department and ask them for details.

Further information

If you would like to know more about the West Midlands Regional Children’s Tumour Registry please contact us. Our information leaflet can be downloaded here. In our leaflet, you will find details of the cancer registration process and how we look after your personal data. A more detailed summary of our Data Protection processes can be found in our Privacy Notice below. You can read about the benefits of cancer registration and your right to opt out of the registry.

If you would like to know more about the National Cancer Registration Service, the benefits of being on the register and how to opt-out, please visit the National Disease Registration Service.

The National Disease Registration Service information leaflet on Cancer Registration can be downloaded here: Cancer Registration Leaflet